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Showing posts with the label endo awareness

Oh endo, why art thou back?

  I find it somewhat ironic that since sharing an old post for Endometriosis Awareness Month, I’ve been in increasing amounts of pain. So much so that my voice is husky and I was sent home early from work. The fatigue has dropped like a curtain behind my eyes, eyes that are ever brimming with tears of frustration, sadness and hormones.   I should rewind a bit as I realise I’ve not posted since before my second surgery.  In October 2019 I had excision surgery with an endo specialist. I was in hospital over night, on oxygen and good pain killers. Apart from one stupid doctor - who told me I was infertile, late at night, while on my own, mistakenly - it was a much better experience compared to my first surgery. She got all the deep spots of endo and checked my fallopian tubes which are all clear.  Since then I had mainly good, pain free/super low pain days. I’ve learnt my triggers (processed cheap mea...

Endo...It's...

I was inspired by a tweet by Life-With-Endo to write another post about living with endometriosis (I promise I'll write about more trips...once I go on some). Everything I say is from my own account, I am not speaking for all endo-warriors. I have also learnt a lot about this condition since my original post. (Incase you don’t make it to the end...yes endo sucks but I ultimately love my life) There’s a common misconception that endo is basically extremely painful periods, this is false. The cells are not exactly the same as those that line the uterus but they are similar. They do bleed during menstruation, this is painful as the blood has nowhere to go so it just pools in different areas of the abdomen cavity. These patches of endo can be super deep in the tissue, causing scaring, fibroids and nodules. These in turn can cause pain at anytime, this can range from cramp to feeling like you’re being stabbed with a hot poker.  I have rectovaginal endo, it’s in my Pouch of...

Spoilers...it’s a cyst!

So, after leaving a nightshift to go to a&e as I thought my appendix was rupturing (very different pain from endo) I’ve been diagnosed with a 4cm ovarian cyst (that’s walnut sized to help you picture it).  The doctors were nice, the nurses not so much. After almost 5 hours in a&e, in which a cannula was inserted into my arm and bloods were taken. I was told to go home and return in the morning for a CT scan to look for kidney stones. I asked if they’d scan my uterus/ovaries too as I was pretty sure it was gynae related, she said no. Luckily for me organs are pretty squished down there and my ovaries showed up on the scan anyways.  It took them a long time to offer me pain relief, the first being a diclofenac suppository (apparently that route is more effective for kidney stones). The nurse let me do it myself, which lessened my embarrassment, although F couldn’t contain his laughter when the doc told us that’s what she was prescribing. It did nothing for my pa...